Genetic and Rare Diseases Information Specialist
Health Research Informatics & Technology Solutions
Are you passionate about improving quality of life through disease prevention, health promotion, and the care of chronic health conditions? Then consider ICF. We work at the forefront of today’s global health issues, helping clients understand the specific needs of diverse populations and address complex health challenges with behavior and disease surveillance and monitoring, research and surveys, training and technical assistance, and informatics and systems.
As a Genetic and Rare Diseases Information Specialist, you will be responsible for developing content for the Genetic and Rare Diseases Information Center (GARD) Website at https://rarediseases.info.nih.gov/. GARD is a program of the National Institutes of Health (NIH) and serves as key resource for patients with rare diseases, their caregivers, and healthcare providers. The GARD website provides information about 6,500 rare diseases as well as guides on general topics to support the rare diseases community. GARD Information Specialists develop website content to explain very technical medical concepts in plain language about rare and/or genetic diseases. You will also contribute to continuous process improvements to support an efficient curation process. Deep knowledge of genetic and rare diseases and ability to review medical literature and databases to remain current in clinical genetics, research, and support resources. Proficient written skills are required and experience with writing for the web and/or science writing is preferred.
- Identify and analyze disease data in the medical literature and relevant databases.
- Develop written summaries of genetic and rare diseases in plain language.
- Contribute to continuous process improvements in procedures and standard language.
- Master’s Degree in Genetic Counseling or Human Genetics.
- 3 years of experience with clinical genetics.
- Excellent writing/editing skills
- Excellent communication, organizational, and interpersonal skills.
- Experience in website content development.
- Board Eligible/Board Certification in Genetic Counseling preferred but not required.
Working at ICF
Working at ICF means applying a passion for meaningful work with intellectual rigor to help solve the leading issues of our day. Smart, compassionate, innovative, committed, ICF employees tackle unprecedented challenges to benefit people, businesses, and governments around the globe. We believe in collaboration, mutual respect, open communication, and opportunity for growth. If you’re seeking to make a difference in the world, visit www.icf.com/careers to find your next career. ICF—together for tomorrow.
ICF is an equal opportunity employer that values diversity at all levels. (EOE – Minorities/Females/ Protected Veterans Status/Disability Status/Sexual Orientation/Gender Identity). For more information, please read our EEO & AA policy.
Reasonable Accommodations are available for disabled veterans and applicants with disabilities in all phases of the application and employment process. To request an accommodation please email firstname.lastname@example.org and we will be happy to assist. All information you provide will be kept confidential and will be used only to the extent required to provide needed reasonable accommodations. Read more about non-discrimination: EEO is the law and Pay Transparency Statement.
Maryland Remote Office (MD99)